Links to patient organisations

Belgium

Canada

Denmark

France

Germany

No website available
MÜSS, Erste deutsche Selbstifhilfegruppe und Beratungsstelle für Menschen mit Schluckstörungen in München:
MÜSS, Frau Heintze, Frau Koch
Neurologisches Krankenhaus
Tristanstrasse 20
80804 München

www.dysphagiezentrum.de Kolner Dysphagiezentrum
Landgrafenstrasse 29
50931 Koln
Tel: + 49 221 912 3702
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Italy

www.assomedici.it/assopazienti.htm
Source of lists of medical associations existing in Italy
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www.ctla.it
Centro di Terapia Logopedica e Audiometrica, Milano
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www.aimaroma.it/
Associazone Italiana Malattia di Alzheimer: contains information about the association and provides information on all aspects of the condition
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www.parkinson.it
Associazione Italiana Parkinsoniani: beAssociazone Italiana Parkinsoniani: contains information about the association and provides information on all aspects of the conditionvat informatie over de vereniging en geeft informatie over alle aspecten van de aandoening
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www.aostanet.com/no_profit/alice/
A.L.I.C.E. – Associazione Lotta Ictus Cerebrale
Italian Association Against Stroke: contains information about the association and provides information on all aspects of the condition
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Netherlands

Norway

Portugal

Spain

Sweden

hem.passagen.se/dysfagi
Swedish Dysphagia Patient Association
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Switzerland

www.GESKES.ch
Gesellschaft für Klinische Ernahrung der Schweiz
General information on dysphagia and how it can be managed
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www.sve.org
Vereinigung für Ernährung (SVE)
Swiss Nutrition Association
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www.swisscancer.ch/
Krebsliga Schweiz – Associazione Svizzera contro il cancro
General information on cancer with reference to dysphagia
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www.alz.ch
Associazione svizzera Alzheimer
General information on neurological disorders and Alzheimer’s disease in combination with dysphagia
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UK

www.ageconcern.org.uk
This site is an excellent source of information on all aspects of life concerning the wellbeing of the elderly
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www.alz.org
Alzheimers Association, the gateway to a wealth of information on the condition and its effects
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www.netdoctor.co.uk
This site provides information on a number of different diseases and conditions including those that may cause dysphagia
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www.stroke.org.uk
UK Stroke Association: contains information about the association and provides information on all aspects of the condition
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www.patient.co.uk
This site directs non-medical people to good quality information about health and disease. Contains information on many disease states including those resulting in dysphagia
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www.mndassociation.org
UK Motor Neurone Disease Association: provides information on all aspects of MND
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www.parkinsons.org.uk
UK Parkinsons Disease Association: provides information on all aspects of Parkinsons Disease
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USA

www.oley.org
The Oley Foundation is a national, independent, non-profit organization that provides up to date information, outreach services, conference activities, and emotional support for home tube fed consumers, their families, caregivers and professionals
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www.stroke.org
National Stroke Association – US site
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www.healthandage.com
Public and professional sites for medical news and information. Sponsored by the Novartis Foundation for Gerontology
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www.healthandage.net/html/min/adi/page2.htm
Alzheimer’s Disease International: guide to national Alzheimer’s associations throughout the world
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www.alz.org
Alzheimer’s Association: US site for families and caregivers of people with Alzheimer’s as well as health care professionals
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www.oncli.com/dysphagia/
Oncology Care International: useful for questions and concerns about cancer diagnosis and conditions. Ask a doctor about dysphagia
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www.sinuscarecenter.com
Ear Nose and Throat Information
Brochures available on a variety of Head and Neck issues. Link is direct to “swallowing disorders”.
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www.nlm.nih.gov/medlineplus/dysphagia
National Library of Medicine
Medline Plus Health Information will link with related articles.
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www.cancer.org
American Cancer Society
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www.nfcacares.org
National Family Caregivers Association
NFCA is a grass roots organization created to educate, support, empower and speak up for the millions of Americans who care for chronically ill, aged or disabled loved ones.
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www.mdausa.org
Muscular Dystrophy Association
The Muscular Dystrophy Association U.S. is a source for news and information about neuromuscular diseases, MDA research and services for adults and children with neuromuscular diseases and their families
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www.nmss-altoona.org
National Multiple Sclerosis Society
The National Multiple Sclerosis Society is dedicated to advancing the cure, prevention and treatment of multiple sclerosis and to improving the lives of those affected by the disease
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www.spohnc.org
Support for People with Oral Head and Neck Cancer
A patient-directed, self-help organization dedicated to meeting the needs of oral and head and neck cancer patients
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www.disabilityresources.org
Disability Resources on the Internet
A "wonderfully well-organized site ... for cutting through the morass of disability-related material on the Web" -- Encyclopedia Britannica Internet Guide
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www.nidcd.nih.gov/health/pubs_vsl/dysph.htm
National Institute on Deafness and Other Communication Disorders
Research on disorders of human communication, including on hearing, balance, smell, taste, voice, speech and language.
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www.parkinson.org
The National Parkinson Foundation, Inc. is one of the largest research and clinical institutes, staffed by world class scientists in Parkinson's and related neurological disorders such as Alzheimer's, Multiple Sclerosis, Huntington's, etc.
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